my story, chaptered
My Story
Every post below is a real chapter from my life with MS. Jump to a category, or just start scrolling.
All Stories
Why I Fundraise for the MS Foundation
Cash is welcome, bracelets are optional — here is where every donation through MS with Moxie actually...
Read the Full Story Sharing My Story on Camera
Notes from the interviews I have done about MS and CAR‑T therapy — and why I keep...
Read the Full Story Explaining Invisible Symptoms to People Who Don’t Get It
The phrases that actually land when fatigue or brain fog need explaining — again — to someone...
Read the Full Story My Actual Heat Intolerance Toolkit
What is actually in my bag on high-symptom days — and what I stopped wasting money on...
Read the Full Story What Treatment Week Was Really Like
No medical jargon here — just what the days of CAR‑T treatment actually felt like, hour by...
Read the Full Story Becoming Patient #1
How I became the first person in the world to undergo CAR‑T therapy for multiple sclerosis —...
Read the Full Story Questions I Wish I’d Asked Sooner
A running list of the questions that actually mattered in those first foggy appointments — the ones...
Read the Full Story The Day I Heard “It’s MS”
Every MS story has a day like this one. Mine started with a phone call I almost...
Read the Full Story Hello world!
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Read the Full StoryDiagnosis
The Day I Heard “It’s MS”
Every MS story has a day like this one. Mine started with a phone call I almost...
Read the Full Story Questions I Wish I’d Asked Sooner
A running list of the questions that actually mattered in those first foggy appointments — the ones...
Read the Full StoryCAR-T Journey
Becoming Patient #1
How I became the first person in the world to undergo CAR‑T therapy for multiple sclerosis —...
Read the Full Story What Treatment Week Was Really Like
No medical jargon here — just what the days of CAR‑T treatment actually felt like, hour by...
Read the Full Story Why I Fundraise for the MS Foundation
Cash is welcome, bracelets are optional — here is where every donation through MS with Moxie actually...
Read the Full StoryEveryday Life
Questions I Wish I’d Asked Sooner
A running list of the questions that actually mattered in those first foggy appointments — the ones...
Read the Full Story My Actual Heat Intolerance Toolkit
What is actually in my bag on high-symptom days — and what I stopped wasting money on...
Read the Full Story Explaining Invisible Symptoms to People Who Don’t Get It
The phrases that actually land when fatigue or brain fog need explaining — again — to someone...
Read the Full StoryAdvocacy & Wins
Becoming Patient #1
How I became the first person in the world to undergo CAR‑T therapy for multiple sclerosis —...
Read the Full Story Sharing My Story on Camera
Notes from the interviews I have done about MS and CAR‑T therapy — and why I keep...
Read the Full Story Why I Fundraise for the MS Foundation
Cash is welcome, bracelets are optional — here is where every donation through MS with Moxie actually...
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