my story, chaptered
My Story
Every post below is a real chapter from my life with MS. Jump to a category, or just start scrolling.
The Day I Heard "It's MS"
What the appointment actually looked like, and the one sentence from my neurologist I still think about.
Questions I Wish I'd Asked Sooner
A running list of the questions that actually mattered in those first foggy appointments.
Becoming Patient #1
How I became the first person in the world to undergo CAR-T therapy for multiple sclerosis — and how it felt to say yes.
What Treatment Week Was Really Like
No medical jargon — just what the days actually felt like, hour by hour.
My Actual Heat Intolerance Toolkit
What’s in my bag on high-symptom days — and what I stopped wasting money on.
Explaining Invisible Symptoms to People Who Don't Get It
The phrases that actually land when fatigue or brain fog need explaining — again.
Sharing My Story on Camera
Notes from the interviews I’ve done about MS and CAR-T — and why I keep saying yes to more.
Why I Fundraise for the MS Foundation
Cash is welcome, bracelets are optional — here’s where every donation actually goes.
A Good MS Day, In Detail
Not every post has to be hard news — sometimes the moxie is just having a genuinely good day.
Story previews shown for design purposes — link each card to your real Facebook posts or blog entries whenever you’re ready.